| Sumita's
Struggle
I
first meet Sumita through a mutual friend who went
to great lengths to brief me about her before the
actual meeting took place. From his concern it was
obvious that she was a very special person and that
I needed to know this.
When
Sumita entered the room you forgot all about her emaciated
body and her bald head, it was her personal warmth
that enveloped you and held you firm. She was a young,
single, working woman with a great zest for life.
However, it was obvious that she was in great emotional
pain. As we talked I realised why. Her treating doctor,
who she greatly respected, had just assigned one of
his juniors to break the news of the spread of her
cancer to her. It had been done in the most brutal
fashion possible. She was still reeling from shock.
Sumita
had been diagnosed with cancer of the colo-rectal
region almost two years before our meeting. She regretted
the fact that it had initially taken doctors almost
a year to correctly diagnose her. She had for several
months been treated for piles. However, being the
positive person she was she had taken this in her
stride and moved on. Subsequently, she had been operated
upon and an opening was made in her abdomen so as
to bypass her rectum. A waste collection bag could
now be attached there. This was followed by weeks
of chemotherapy and radiotherapy. At the end of it
she emerged even more determined to live life to the
full.
A
year later, during a regular check up, the doctors
discovered a recurrence. It had been caught early
and Sumita was reassured that her new regimen of chemotherapy
treatment would take care of it. She had had no inkling
that things were not going well until that fateful
day when the news had been broken to her. When I met
her a week later, she was devastated. For the first
time she had begun to lose hope. However, more than
anything else it was the cowardice of the doctor who
had not had the courage to face her and the callousness
of the doctor who had been assigned to break the news
to her that was causing her the greatest anguish.
Sumita was a generous, honest and trusting person,
she felt greatly betrayed.
Sumita
was to prove in the months that followed that you
cannot put a good woman down or suppress the will
to live. With the help of her loving family, which
comprised a widowed mother and three younger sisters,
and a wide circle of friends and admirers, Sumita
began to fight back. The mutual friend, a colleague,
who had introduced me to her also continued to provide
much needed emotional and practical support. This
man, with the heart of a saint, lent her his car and
driver whenever she needed to visit the hospital.
As Sumita was now in pain her visits were generally
to the pain clinic at the Institute Rotary Cancer
Hospital at AIIMS where she was prescribed oral morphine.
However these visits began to take a toll on her for
not only did she have to cover a long distance, but
she had to sit for several hours on a hard wooden
bench in the waiting area before being called in to
see the doctor. For some one who was severely emaciated
and suffered continually from nausea these visits
became unbearable.
While
Sumita relied on conventional medicine to control
her pain she had by no means given up on treatment
options. I had the unique experience of accompanying
her on a journey to a faith healer in Banswara, Rajasthan,
a few months before her death. This was an extremely
difficult journey for her body to undertake, but as
they say, the spirit was willing. From the time Sumita
and I, accompanied by a friend of Sumita's and her
parents, left the New Delhi railway station I was
witness to her magic. There was not a soul in the
compartment or along the way who did not want to help
her in one way or the other. In fact, on our return
journey we were met halfway by a railway officer and
his family who had prepared food for our onward journey.
These were ordinary people who Sumita had befriended
on our way to Banswara and who admired her courage.
Despite
the long journey and her immense weakness Sumita could
not wait to visit the faith healer who she had heard
could "suck out" tumours with his mouth.
She had heard about him from another fellow survivor
who had made this journey for the removal of a cancerous
tumour in her food pipe. She seemed to be doing better
on her return. Unfortunately, the faith healer was
not willing to "operate" on Sumita just
yet when we met him. He asked her to take some tablets
prepared by him and to swallow them down with cow's
urine. She was to return after a few weeks. Bitterly
disappointed, Sumita decided to visit another faith
healer in the vicinity who was also credited with
wondrous cures. He used the blade of a sword, it was
said, to remove the tumour and the amazing part was
that there was not a scar on the body at the point
of contact! That afternoon we visited this healer
and were part of a stream of people many of whom were
camped in a nearby cowshed. Sumita had her turn with
the healer (the clicking sound his sword made reminded
me of the retractable blades of the daggers we used
in school plays as children).
Sumita
died a few weeks later after a valiant fight. She
was determined to prove the doctor who had said that
she would live for only two months wrong. She succeeded.
Sumita lived for at least a year after that cruel
verdict. Seeing Sumita's anguish and suffering I had
discussed with her the need for a palliative care
service for people with advanced cancer who had been
abandoned by the medical system. She fully endorsed
this suggestion and left us a grant of Rs. 1 lakh
to make this a reality. We at CanSupport are happy
to declare that Sumita's vision and her story of selfless
courage continue to inspire us even today.
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